Behçet's UK 2019 AGM & Conference Harrogate

Behçet’s UK (formerly Behçet’s Syndrome Society) was formed in 1983 by Judith Buckle (1950-1997).

 

Behçet’s UK: How we help

• We were instrumental in establishing Specialist Centres for Behçet’s in NHS England and we now lobby for equivalent care in Wales, Scotland and Northern Ireland.
• Hold an Annual General Meeting and Conference. Allowing those affected by Behçet’s to hear from Behçet’s specialists and patients, ask questions and meet others with this rare condition.
• Publish a quarterly newsletter keeping our members up to date with the Society’s activities including lobbying on rare diseases along with our work with researchers.
• Maintain an active Medical Advisory Panel with eminent representatives from each of the medical disciplines involved in Behçet’s to whom questions can be directed.
• Manage a website which includes factsheets written by lead Behçet’s clinicians on each of the areas affected by Behçet’s.
• Provide a Helpline run by volunteers who have an understanding of Behçet’s.
• Facilitate peer to peer support groups to minimise the isolation experienced by patients.
• Award small personal grants for items which will help members manage their Behçet’s day to day.
• Host an annual event for members to have fun with their friends, family and carers and get to know others affected by Behçet’s.